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| About site: Transgendered/Intersexed - Genetic Org |
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| About site: http://www.genetic.org/ |
Title: Transgendered/Intersexed - Genetic Org Klinfelter's support site. Designed to provide support and education for families and professionals dealing with these genetic conditions, including sex chromosome variations 47XXY, 48XXYY, 48XXXY, 49 |
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Centre_for_Sustainable_Development Interdisciplinary research group drawing on the knowledge and expertise of nine departments at Ghent University. [Duthc site with a section in English]
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This is websites2007.org cache of m/ as retrieved on 2008.07.24 websites2007.org's cache is the snapshot that we took of the page as we crawled the web. The page may have changed since that time.
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Welcome to KS&A @import "http://www.genetic.org/knowledge?css=support/style_css.v.1213926811"; Home About KS&A Executive Officers Board of Directors Scientific Advisory Committee KS&A Staff and Volunteers Organizational Governance Employment Opportunities Privacy Policy Contact Us Locate Information Conferences Conference Materials Newsletters Online Discussion Groups Research Studies and Clinical Trials Share Your Story Awards and Recognition Find Resources KS&A Materials for Sale Annotated Reading List Ask the Experts Online Discussion Groups Links to Other Resources In the News Get Support About Support Groups Find a Support Group or Chapter in Your Local Area Find a Health Professional Find an Education Advocate Health Benefits and Insurance Online Discussion Groups Start a Support Group Links for Chapter Leaders Giving to KS&A How to Give Donate Online Now Giving Your Time Planned Giving Tribute Donations Directed Donations IRS Form 990 Useful Links Network with Others Discussion Groups Subscribe to a Discussion Group How to Participate in a Discussion Discussion Archives Other Useful Commands Links to Other Groups Search Welcome to KS&A KS&A’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives To a growing number of people, the letters “KS&A” stand for Knowledge Support & Action. KS&A is the nation’s oldest and largest non-profit organization serving individuals and families affected by an uncommon number of X and/or Y chromosomes, including 47,XXY, Klinefelter syndrome, Trisomy X, 47,XYY, mosaicism and other associated conditions. KS&A received its start on April 12, 1989, when nationally syndicated columnist Ann Landers published a letter written by the concerned mother of a then 8-year old 47,XXY son.Within weeks, more than a thousand letters poured in from individuals all over the country who were affected by these conditions and other parents who expressed similar concerns with the lack of timely diagnosis, inaccurate information and poor support services for affected persons. KS&A was formed shortly thereafter, and has operated continuously ever since.What began as an effort by one concerned individual to locate information and support, has grown into an international support organization that today responds to calls and inquiries from persons who are just learning of the diagnosis, sponsors conferences and other events that are directed to the needs and interests of the individuals affected by these conditions, their families, and the clinicians, educators and researchers who serve them, and much more.... How can we assist you? We are as close as your telephone and offer support through a network of volunteers for each of the conditions we serve. You may access this network by calling KS&A on our toll-free number from anywhere in the U.S. or Canada, (888) 999-9428, or from outside the U.S. at (949) 858-8384. Our website is organized into seven sections, which are listed horizontally across the top of each page including this one. By rolling your mouse over each section title, you can see the various topics that it includes. Click on any of these topics or any of the highlighted words or phrases throughout the site to go directly to that service or to get more information about the subject.Alternatively, you can click on the button in the right-hand column of this page corresponding to the specific condition that affects you, a member of your family or someone you know, in order to learn more about the condition and what KS&A offers expressly for that chromosomal variation. Or, by clicking on the word “Search” in the upper right hand corner of each page, you open a powerful tool to locate specific information within this site by keyword.Bookmark this page so that you can return here to read the latest announcements such as upcoming conferences and special offers, which are updated often. Please be patient as we are still working on the siteAlthough this site contains well over 200 pages of high quality content, it remains a work-in-process. On pages where there is still considerable work yet to be done, you may see a “Please be patient” message describing the new functionality or content we foresee adding as time and financial resources permit. We’d love to have your assistance in getting this work accomplished sooner, so please let us know if you’d care to Volunteer Your Time or to Make a Contribution that will assist us to complete these sections even more quickly so that others will benefit. Keyword Search Only www www.genetic.org Special Interest 2008 - FAMILIES’ CONFERENCE and ADULT RETREAT 2008 Mile-High Conference - Click here for comprehensive information and a printable registration form. (PDF)Conferences provide one of the best opportunities to learn about these conditions and to expand your support network. Several terrific events are planned this summer. Click here for details. Condition-Specific Information KS&A offers services and support for each of the following conditions. To learn more, click on the condition that interests you. Take Our Poll - Get Instant Results Are you looking for information on Klinefelter Syndrome or other X and/or Y chromosome conditions? Click here to take our poll. 47,XXY Klinefelter Trisomy X 47,XYY Other Join KS&A's Mailing ListEmail: Hear from some of the leading experts on Klinefelter Syndrome and XXY Single and multi-disk DVD sets of the proceedings of KS&A’s 2006 National Conference focusing on Pediatric and Adolescent Issues and Concerns of XXY and Klinefelter syndrome are now available. Click here for more information. Hear from Some of the Leading Experts on XYY and Trisomy X View up to 20 hours of presentations by some of the world’s foremost experts on X and Y chromosome variations. DVDs from KS&A’s March 2006 [First Ever] National Conference on Trisomy X and XYY are now available. Click here for more information and to order online. Subscribe to a Discussion Group Tap into a network of hundreds of real people dealing with the same issues as you. KS&A offers seven free discussion lists that give you an opportunity to ask questions, exchange ideas, information, news, comments or whatever related to X and/or Y chromosome variations. Learn more about these free lists and enroll today... CSI: Miami Season Finale Focuses on a Man with Extra Y Chromosome The 2007 season finale of CSI: Miami deals with a fictional suspect who is 47,XYY, one of several X and Y chromosome variations KS&A represents. Click here to read more Health Benefits and Insurance For our members who are uninsured, KS&A is looking into offering accident insurance and a mix of supplemental health benefits that can be custom tailored to an individual’s needs, including 24 X 7 medical advice and counseling from licensed professionals. Read more about this... Find Support and Professionals Near You KS&A offers three new interactive tools that assist you to locate the names of knowledgeable health professionals, education advocates as well as support groups and local chapters in your area. Self-Assessment Tools Begin to take control of your health with EBSCO Publishing’s proprietary interactive healthy-living calculators and health risk assessors. KS&A, 11 Keats Court, Coto de Caza, CA 92679Call Toll-Free: (888) 999-9428 • Outside USA & Canada: (949) 858-9428 Disclaimer: The information presented on this site is not intended as a substitute for professional medical advice. Don't use this information to diagnose or develop a treatment plan for a health problem, disease or condition without consulting a qualified health care provider. If you are in a life-threatening or emergency medical situation, seek medical assistance.LEGAL CONDITIONS AND TERMS OF USE ARE APPLICABLE TO ALL USERS OF THIS SITE. ANY USE OF THIS SITE CONSTITUTES YOUR AGREEMENT TO THESE TERMS AND CONDITIONS OF USE. © 1989 - 2008 Klinefelter Syndrome and Associates, Inc.site last updated on 07/04/2008 09:21 ampowered by ExpressionEnginesite by NetRaising _uacct = "UA-1348487-2";urchinTracker(); |
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Klinfelter's | support | site. | Designed | to | provide | support | and | education | for | families | and | professionals | dealing | with | these | genetic | conditions, | including | sex | chromosome | variations | 47XXY, | 48XXYY, | 48XXXY, | 49 |
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http://www.genetic.org/
Genetic Org 2008 July
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dvd
Klinfelter's support site. Designed to provide support and education for families and professionals dealing with these genetic conditions, including sex chromosome variations 47XXY, 48XXYY, 48XXXY, 49
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